Beating Rare Autoimmune Encephalitis

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Jill Chadwick

News Director

Office: (913) 588-5013

Cell: (913) 223-3974

Email

jchadwick@kumc.edu

Kansas City, Kan- Dave Dandurand’s life changed when he experienced seizures that didn't fit the typical epilepsy profile. After three years, doctors discovered a rare autoimmune condition, CSPR -2 encephalitis, causing his seizures.

Treatment involved a steroid to control brain swelling and monthly gamma guard IV infusions. Dave's story highlights the significance of recognizing and addressing autoimmune conditions in neurology.

Dave Dandurand, patient

  • Dave recounts his first two fainting spells, which he initially dismissed as high blood pressure or a heart issue.
  • He discusses his current treatment, including monthly gamma guard IV infusions and anti-seizure medication.
  • Dave shares his relief and gratitude for the diagnosis and treatment.

Dr. Murtaza Khan, Epileptologist, The University of Kansas Health System

  • Dr. Khan explains the importance of stopping inflammation to improve memory and overall health.
  • He discusses the importance of recognizing drug-resistant epilepsy and the need for immune therapies.

Dr. Daniel Mafla, Neuroimmunologist, The University of Kansas Health System

  • Dr. Mafla emphasizes the importance of early recognition and treatment of autoimmune encephalitis.
  • He explains why some seizure patients experience memory loss and others do not.