Kansas City, KS: What started as weakness and numbness quickly left Lester McKinzy unable to walk, leading doctors on a search for answers that ultimately revealed POEMS syndrome. Which is a rare and life-threatening blood disorder often mistaken for other neurological diseases like multiple sclerosis. On this episode of Open Mics with Dr. Stites, Lester shares his journey from construction worker to wheelchair-bound patient and the stem cell transplant that helped him regain his strength and mobility. Specialists from The University of Kansas Cancer Center explain the warning signs of POEMS syndrome, why early diagnosis is critical and how advanced treatments are helping patients reclaim their lives.
Dr. Mario Castro, Division Chief of Pulmonary Critical Care and Sleep Medicine, The University of Kansas Health System
Dr. Mario Castro discussed the Lung Health Cohort Research Study. Lung Health Cohort Study | American Lung Association
The study involves enrolling 25 to 35-year-olds without significant lung or heart disease.
Lester McKinzy, Patient
Lester was initially misdiagnosed with multiple sclerosis before being referred to The University of Kansas Cancer Center
He was diagnosed with POEMS and underwent a stem cell transplant, which significantly improved his condition.
He emphasizes the importance of faith and determination in his recovery.
Dr. Al-Ola Abdallah, Director of Midwest Stem Cell Therapy Center, The University of Kansas Cancer Center
Dr. Abdallah explains POEMS syndrome, a rare blood cancer involving polyneuropathy, organomegaly, endocrinopathy, and skin changes.
He explains the syndrome is difficult to diagnose and often misdiagnosed.
Dr. Dana Hawkinson, Medical Director, Infection Prevention and Disease Control, The University of Kansas Health System
Dr. Hawkinson provides an update on global health issues and the importance of international cooperation.
He discusses the current Ebola crisis, the high mortality rate, geopolitical challenges and what you need to know.
