Kansas City, KS- Dr. Steve Stites speaks with researcher Kayla Varberg about Lymphangioleiomyomatosis (LAM), a rare lung disease. Kayla shares her personal experience of being diagnosed during pregnancy and how she now manages the condition. Their discussion emphasizes the importance of specialized care and strong community support.
Dr. Moben Mirza, Urologist, The University of Kansas Health System
Discusses the risks and challenges of performing surgery when Kayla was 14 weeks pregnant.
Dr. Vishal Shah, Neurologist, The University of Kansas Health System
Discusses the importance of having a support system and the role of the LAM Foundation in providing resources and opportunities for patients.
Dr. John Fritzlen, Cardiologist, The University of Kansas Health System
Emphasizes that while tuberous sclerosis can cause heart tumors early in life, these are usually benign and tend to shrink or disappear on their own by adulthood.
Dr. Chase Hall, Pulmonologist, The University of Kansas Health System
Explains the impact of LAM on the lungs and the role of sirolimus in managing the disease.
